Friday, 25 September 2009

25th September

It's been a better week but still with highs and lows.

We've waited a number of days for the results of Cameron's blood tests.

The Doctors are happy that Cameron is holding his own. Jo says that his colour is better and he is receiving less help for his breathing.

It's very hard. Only Jo and Sanjay can visit. This prevents infection in the unit.

Catriona and I have had several rows as we feel the tension and frustration of not being able to visit. We feel the hurt of not being able to help them.

Each day is a further step forward and increases our hopes that our grandson will be soon be home.

I spoke to Jo tonight mostly about normal things. How was Arun. Had Sanjay sorted his car. Had they bought the wall paper to redecorate their lounge.

Jo brought back the reality of the day when she told me about another small child the same age as our Cameron. He had been rushed to Theatre but had died before the surgeons could operate.

Life of these little children is so fragile. I feel so sorry for the parents and family and pray that our Grandson can get through to a safe home coming.

Friday, 18 September 2009

18th September

It's been a much harder week.
Started well. Cameron was making steady progress so he was moved to an open cot and taken off CPAP his feeding volume was increased with a lower feeding frequency.
He did well for first three days. But his haemoglobin level was low and he was given a blood transfusion to enable him to absorb more oxygen.
His colour looked better when Jo arrived the next day. During the day his blood pressure crashed and he stopped breathing.
The staff were able to help him and he was returned to an incubator with assistance from his CPAP.
He's had another blood transfusion and his condition appears to be stable.
We should all know more in the next couple of days.

Friday, 11 September 2009

11th September

It's Friday and both Grandmas have commitments so can't look after Arun.
Don't worry Super Granpy is at hand. I'll take a day off. Then Jo can spend the day with Cameron.
Arrive on time Aruns got the grumps. His teeth are hurting and he's not on top form.
Think the best plan is to take him to the Bunny Park. Load him up and make our way to the Park.
Arun is fast asleep. Push him slowly home. Carpenters are busy putting up shelves so I decide to put him in the car and take him home.
A visit to Mead Open Farm should brighten him up as he loves the animals.
Grandma has an afternoon appointment at the hospital so joins us for lunch and a visit round the farm. Arun won't eat so we decide a walk round the animals will help. He loves the Goats but then nods off.
We decide its best to take Grandma to Hospital then we can take Arun back to London as Jo will get home about five.
All works well until we are held up in traffic and Arun wakes very upset and is sick all over himself and the car.
All soon cleared up. Arun's still unhappy but pleased to see his Mum.
Cameron's making steady progress and she had a good day.

Friday, 4 September 2009

4th September

Steady progress.

Cameron has continued his Journey and is making steady progress.
We take each day as it comes and are grateful that he is progressing.
He has regained his weight loss and is able to breathe for short periods by himself.
When a cot becomes available he will be transfered to a unit that requires a slightly lower level of care.
Jo and Sanjay are still his only visitors.
They have taken a few pictures on their phones we can share